Tag Archives: SUDC Awareness month

26 State Proclamations Kick Off Awareness Month for Unexplained Childhood Deaths

ROSELAND, N.J. /ScoopCloud/ -- The Sudden Unexplained Death in Childhood (SUDC) Foundation thanks Arkansas, Alabama, Arizona, Connecticut, Georgia, Hawaii, Illinois, Indiana, Maine, Massachusetts, Mississippi, Missouri, Montana, Nevada, New Hampshire, New Jersey, New Mexico, Ohio, Oklahoma, Oregon, Pennsylvania, Tennessee, Texas, Vermont, Washington, and Wisconsin for making statewide proclamations declaring March 2022 SUDC Awareness Month.

These are the first U.S. states to join a nationwide effort led by the SUDC Foundation to raise awareness of one of the most under-recognized medical tragedies of our time, marking the beginning of a month-long worldwide campaign.

Sudden Unexplained Death in Childhood (SUDC) is a category of death in children over the age of 1 year which remains unexplained after a thorough investigation, including an autopsy. Most often, a seemingly healthy child goes to sleep and never wakes up.

"Even though SUDC affects approximately 400 children in the United States annually, many physicians and medical professionals are unaware of it," says Dr. Erin Bowen, Vice President of the SUDC Foundation and pediatrician, "Increased awareness can lead to further research initiatives to help uncover causes and risk factors for these deaths, with the ultimate goal of preventing them, leading to a future free of SUDC."

Recent research at NYU Langone health discovered the first genetic underpinnings of SUDC.

Awareness is key to identifying cases of SUDC for research. Recent research funded by the SUDC Foundation and published in the "Proceedings of the National Academy of Sciences" analyzed the DNA codes of 124 children who were lost to SUDC as well as their biological parents. The researchers at NYU Grossman School of Medicine found that nearly 9 percent-or 11 of the 124 children-had DNA code changes in genes that regulate calcium function and attributed these changes to contributing to their deaths. Additional research by the group, also funded by the SUDC Foundation, found disagreements in 40% of cause of death opinions among 100 cases sudden unexpected pediatric deaths reviewed suggesting the SUDC rate by the U.S. Centers for Death Control and Prevention (CDC) may be an underestimation.

"Each March, we try to make incredible strides to raise awareness throughout SUDC Awareness month," said Laura Gould, President and Co-founder of the SUDC Foundation. "We see every day how critical awareness is to identify families affected as well as advocating for crucial research."

The SUDC Foundation is advocating for SUDC Awareness Month proclamations in all 50 U.S. states this March. In 2021, 43 U.S. states participated. This nationwide effort began in 2016, inspired by Drew Joseph Boswell and the Boswell family. The Boswell family successfully advocated for the first statewide proclamation declaring March 2015 as SUDC Awareness Month in the State of Louisiana.

To see a full list of previous efforts as well as additional states who have joined, please visit: https://sudc.org/legislation-and-policy/sudc-awareness-proclamations/

The SUDC Foundation will once again mark SUDC Awareness Month by hosting weekly activities to raise awareness of SUDC and remember the children gone far too soon. To learn more, please visit: https://sudc.org/sudc-awareness-month/

RELATED LINKS
https://www.pnas.org/doi/full/10.1073/pnas.2115140118

The Sudden Unexplained Death in Childhood (SUDC) Foundation thanks Arkansas, Alabama, Arizona, Connecticut, Georgia, Hawaii, Illinois, Indiana, Maine, Massachusetts, Mississippi, Missouri, Montana, Nevada, New Hampshire, New Jersey, New Mexico, Ohio, Oklahoma, Oregon, Pennsylvania, Tennessee, Texas, Vermont, Washington, and Wisconsin for making statewide proclamations declaring March 2022 SUDC Awareness Month.

Related link: https://sudc.org/

Twenty-Nine States Proclaim March SUDC Awareness Month for Unexplained Childhood Deaths

ROSELAND, N.J. /ScoopCloud/ -- The Sudden Unexplained Death in Childhood (SUDC) Foundation thanks Alabama, Arizona, Arkansas, Florida, Georgia, Hawaii, Idaho, Indiana, Kansas, Louisiana, Massachusetts, Mississippi, Missouri, Montana, Nebraska, Nevada, New Hampshire, New Mexico, North Dakota, Oklahoma, Oregon, Pennsylvania, South Carolina, Tennessee, Vermont, Washington, West Virginia, Wisconsin and Wyoming for making statewide proclamations declaring March 2021 as SUDC Awareness Month. The SUDC Foundation also applauds the California State Legislature for recognizing SUDC Awareness Month in House Resolution 24.

These are the first states to join a nationwide effort led by the SUDC Foundation to raise awareness of one of the most under-recognized medical tragedies of our time, marking the beginning of a month-long campaign all over the world.

Sudden Unexplained Death in Childhood (SUDC) is a category of death in children over the age of 1 year which remains unexplained after a thorough investigation, including an autopsy. Most often, a seemingly healthy child goes to sleep and never wakes up. Approximately 400 children are lost to SUDC in the United States every year.

"As we enter another March, we are energized to have another successful month of raising SUDC awareness," said Laura Gould Crandall, President and Co-founder of the SUDC Foundation. "Awareness is crucial for funding critical research and supporting those affected by sudden unexpected or unexplained death in childhood. SUDC is the fifth leading category of death in children ages 1 to 4, yet SUDC receives no targeted public funding. The SUDC Foundation provides all services at no cost to bereaved families. Awareness helps families find us when they need us most and awareness launches us toward a world free of SUDC."

"Throughout March, we will continue to focus efforts around increasing awareness within the medical community as well," added Dr. Erin Bowen, SUDC Foundation Vice President and pediatrician. "Despite the fact that SUDC affects approximately 400 children annually, many physicians and medical professionals are unaware of it. Currently the understanding of SUDC eludes the medical community. Increased awareness can lead to further research initiatives to help uncover causes and risk factors for these deaths, with the ultimate goal of preventing them, leading to a future free of SUDC. As we work toward a deeper understanding of SUDC, we can ensure that families are adequately supported when these tragedies occur.

"If even one new family is connected to the SUDC Foundation as a result of our community's awareness efforts, then we can consider this month a success. Many bereaved parents will tell you their biggest fear is their child will be forgotten. SUDC Awareness Month gives us an opportunity to share the stories of these families, to honor the children affected and to say their names. SUDC awareness gives families a voice."

The SUDC Foundation will once again mark SUDC Awareness Month by hosting weekly awareness activities for all supporters to participate. To learn more, please visit: https://sudc.org/get-involved/sudc-awareness-month.

The SUDC Foundation is advocating for SUDC Awareness Month proclamations in all 50 U.S. states this March. In 2020, 41 participated. This nationwide effort began in 2016, inspired by Drew Joseph Boswell and the Boswell family. The Boswell family successfully advocated for the first statewide proclamation declaring March 2015 as SUDC Awareness Month in the State of Louisiana.

To see a list of previous efforts as well as additional states who have joined, please visit: https://sudc.org/get-involved/legislative-advocacy/sudc-awareness-proclamations.

About the SUDC Foundation:

The SUDC Foundation's mission is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to families.

The Sudden Unexplained Death in Childhood (SUDC) Foundation thanks Alabama, Arizona, Arkansas, Florida, Georgia, Hawaii, Idaho, Indiana, Kansas, Louisiana, Massachusetts, Mississippi, Missouri, Montana, Nebraska, Nevada, New Hampshire, New Mexico, North Dakota, Oklahoma, Oregon, Pennsylvania, South Carolina, Tennessee, Vermont, Washington, West Virginia, Wisconsin and Wyoming for making statewide proclamations declaring March 2021 as SUDC Awareness Month.

Related link: https://sudc.org/

Twenty-Two States Proclaim March 2020 SUDC Awareness Month for Unexplained Childhood Deaths

ROSELAND, N.J. /ScoopCloud/ -- The Sudden Unexplained Death in Childhood (SUDC) Foundation thanks Alabama, Arkansas, Florida, Georgia, Hawaii, Illinois, Iowa, Louisiana, Massachusetts, Mississippi, New Hampshire, New York, North Carolina, North Dakota, Oklahoma, Pennsylvania, Rhode Island, South Carolina, Tennessee, Texas, Virginia, West Virginia for making statewide proclamations declaring March 2020 SUDC Awareness Month.

These are the first states to join a nationwide effort led by the SUDC Foundation to raise awareness of one of the most under-recognized medical tragedies of our time, marking the beginning of a month-long campaign all over the world.

Sudden Unexplained Death in Childhood (SUDC) is a category of death in children over the age of 1 year which remains unexplained after a thorough investigation, including an autopsy. Most often, a seemingly healthy child goes to sleep and never wakes up. Approximately 400 children are lost to SUDC in the United States every year.

"We have made incredible strides as we honor SUDC Awareness Month each March," said Laura Gould Crandall, President and Co-founder of the SUDC Foundation. "Last year, we surpassed serving our 1,000th family since the inception of the SUDC Foundation. While we are sorry for the reason, we are thankful these families were able to connect with our worldwide community and unique range of services. This is a true testament to the SUDC Foundation's tireless outreach and awareness efforts. But we must keep striving to ensure every family who needs us is able to find us and to advocate for research that will help us create a world without SUDC."

The SUDC Foundation will once again mark SUDC Awareness Month by hosting weekly activities for every SUDC supporter to raise awareness of SUDC and remember the children gone far too soon.

To learn more, please visit: https://sudc.org/get-involved/sudc-awareness-month

The SUDC Foundation is advocating for SUDC Awareness Month proclamations in all 50 U.S. states this March. In 2019, 43 U.S. states participated. This nationwide effort began in 2016, inspired by Drew Joseph Boswell and the Boswell family. The Boswell family successfully advocated for the first statewide proclamation declaring March 2015 as SUDC Awareness Month in the State of Louisiana.

To see a full list of previous efforts as well as additional states who have joined, please visit: https://sudc.org/get-involved/legislative-advocacy/sudc-awareness-proclamations

About the SUDC Foundation:

The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to families. Learn more: https://sudc.org/

Media Contact:
Stephanie Zarecky
The SUDC Foundation
Tel 973.795.1257
stephanie@sudc.org

*LOGO links for media:
[1] SUDC Logo: https://www.Send2Press.com/300dpi/18-0228s2p-sudc-fdn-300dpi.jpg

[2] Awareness Logo: https://www.Send2Press.com/300dpi/19-0301s2p-SUDC-AwarenessMonth-300dpi.jpg

The Sudden Unexplained Death in Childhood (SUDC) Foundation thanks Alabama, Arkansas, Florida, Georgia, Hawaii, Illinois, Iowa, Louisiana, Massachusetts, Mississippi, New Hampshire, New York, North Carolina, North Dakota, Oklahoma, Pennsylvania, Rhode Island, South Carolina, Tennessee, Texas, Virginia, West Virginia for making statewide proclamations declaring March 2020 SUDC Awareness Month.

Related link: https://sudc.org/

Twenty States Proclaim March SUDC Awareness Month for Unexplained Childhood Deaths

ROSELAND, N.J. /ScoopCloud/ -- The Sudden Unexplained Death in Childhood (SUDC) Foundation is pleased to announce 20 states, Arizona, Arkansas, Florida, Hawaii, Indiana, Louisiana, Mississippi, Missouri, Montana, Nevada, New Hampshire, Ohio, Pennsylvania, Rhode Island, South Carolina, Tennessee, Texas, Utah, Washington and West Virginia have made statewide proclamations declaring March 2019 SUDC Awareness Month.

These are the first states to join a nationwide effort led by the SUDC Foundation to raise awareness of one of the most under-recognized medical tragedies of our time, marking the beginning of a month-long campaign all over the world.

Sudden Unexplained Death in Childhood (SUDC) is a category of death in children over the age of 1 year which remains unexplained after a thorough investigation and autopsy. Most often, SUDC occurs in otherwise healthy children during sleep. Approximately 400 children are lost to SUDC in the United States every year.

"We want every family who loses a child to SUDC to be able to find the SUDC Foundation to get support as soon they need us," said Laura Gould Crandall, Executive Director and Co-Founder of the SUDC Foundation. "These families too often feel lost and alone in their grief, without information, resources or knowledge that other families exist with a similar loss. Raising awareness of SUDC is essential to our work to support those affected by SUDC and advocate for research that will help us create a world without SUDC."

The SUDC Foundation will once again honor SUDC Awareness Month by hosting weekly activities for every SUDC supporter to raise awareness of SUDC and remember the children gone far too soon.

To learn more, please visit: https://sudc.org/advocacy/sudc-awareness-month.

The SUDC Foundation is advocating for SUDC Awareness Month proclamations in all 50 U.S. states this March. In 2018, 43 U.S. states participated. This nationwide effort began in 2016, inspired by Drew Joseph Boswell and the Boswell family. The Boswell family successfully advocated for the first statewide proclamation declaring March 2015 as SUDC Awareness Month in the State of Louisiana.

To see a full list of previous efforts as well as additional states who have joined, please visit: https://sudc.org/advocacy/legislative-policy-and-advocacy/us-state-proclamations

About the SUDC Foundation:
The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to families. Learn more: https://sudc.org/.

The Sudden Unexplained Death in Childhood (SUDC) Foundation is pleased to announce 20 states, Arizona, Arkansas, Florida, Hawaii, Indiana, Louisiana, Mississippi, Missouri, Montana, Nevada, New Hampshire, Ohio, Pennsylvania, Rhode Island, South Carolina, Tennessee, Texas, Utah, Washington and West Virginia have made statewide proclamations declaring March 2019 SUDC Awareness Month.

Related link: https://sudc.org/

Ten States Proclaim March 2018 Awareness Month for Unexplained Childhood Deaths to Kick Off Month-Long Campaign

CEDAR GROVE, N.J. /ScoopCloud/ -- The Sudden Unexplained Death in Childhood (SUDC) Foundation is pleased to announce nine states, Alabama, Arizona, Iowa, Louisiana, Michigan, Nevada, Oklahoma, South Carolina, Utah & Wisconsin, have made statewide proclamations declaring March 2018 SUDC Awareness Month. These are the first states to join a nationwide effort led by the SUDC Foundation to raise awareness of one of the most under-recognized medical tragedies of our time.

Sudden Unexplained Death in Childhood (SUDC) is a category of death in children over the age of one year which remains unexplained after a thorough investigation and autopsy. Most often, SUDC occurs in otherwise healthy children during sleep. At least 400 children are lost to SUDC in the United States every year.

"Far too often, the first time people hear about SUDC is when they, or someone they know, has lost a child to it," said Laura Gould Crandall, Executive Director and Co-Founder of the SUDC Foundation. "SUDC families too often grieve in isolation, without information, resources or knowledge that other families exist with a similar loss. Raising awareness of SUDC is integral to the work of the SUDC Foundation so we can support those affected by SUDC and advocate for research that will further our understanding of the causes and ways to prevent SUDC."

The SUDC Foundation is advocating for SUDC Awareness Month proclamations in all 50 U.S. states this March. In 2017, 36 U.S. states participated. This nationwide effort began in 2016, inspired by Drew Joseph Boswell and the Boswell family. The Boswell family successfully advocated for the first statewide proclamation declaring March 2015 as SUDC Awareness Month in the State of Louisiana.

To see a full list of previous efforts as well as additional states who have joined, please visit: https://sudc.org/advocacy/legislative-policy-and-advocacy/us-state-proclamations

This year, the SUDC Foundation is expanding its awareness month campaign to host weekly activities for every SUDC supporter to raise awareness of SUDC and honor the children gone far too soon. To learn more, please visit: https://sudc.org/advocacy/sudc-awareness-month.

About the SUDC Foundation:

The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to families. To learn more about SUDC and the SUDC Foundation, please visit https://sudc.org/.

The Sudden Unexplained Death in Childhood (SUDC) Foundation is pleased to announce nine states, Alabama, Arizona, Iowa, Louisiana, Michigan, Nevada, Oklahoma, South Carolina, Utah and Wisconsin, have made statewide proclamations declaring March 2018 SUDC Awareness Month. These are the first states to join a nationwide effort led by the SUDC Foundation to raise awareness of one of the most under-recognized medical tragedies of our time.

Related link: https://sudc.org/

Thirty-Seven U.S. State Proclamations Raise Awareness of Mysterious Childhood Deaths

CEDAR GROVE, N.J. /ScoopCloud/ -- The emotional trauma associated with losing a child is overwhelming. But when that loss is combined with a total lack of explanation, grief can become far more complicated, says the SUDC Foundation. Sudden Unexplained Death in Childhood (SUDC) is the sudden unexplained death of a child over the age of one which remains unexplained after a thorough case investigation is conducted.

It is not a diagnosis but a category of death that eludes our scientific understanding today. In 2015, the U.S. Centers for Disease Control and Prevention reported that 393 children between the ages of 1 and 19 years died without a clear explanation for their death. The majority of SUDC deaths affect children aged 1-4 years.

"It is a frightening statistic, especially since SUDC often occurs in otherwise healthy children during sleep-time," explained Laura Crandall, co-founder and President of the SUDC Foundation, which is dedicated to increasing awareness, funding crucial research and the prevention of SUDC.

The Foundation is the only organization worldwide devoted solely to the needs of families and professionals affected by childhood sudden death.

When Devon and Georgia Boswell lost their precious son Drew on March 12, 2014, at the age of 15 months, they were devastated. "When we lost Drew, we felt all our dreams for the future slip through our fingers. How could our healthy 15 month-old, simply not wake up," a question Georgia Boswell still asks today.

Their friend, Christina Grantham, was also shocked by the inexplicable death of little Drew. She joined forces with the SUDC Foundation to improve the country's awareness of this little known tragedy. In 2016, she spearheaded the first nationwide awareness campaign in the U.S. to proclaim SUDC Awareness month to educate the public and raise funds for crucial research. Twenty-six U.S. states signed on.

"It has been an honor to work with Christina Grantham - a tireless volunteer in the fight to understand and prevent SUDC. Her dedication is not only a reflection of her love for Drew, but also her love for all children," states Lorri Caffrey, Co-founder of the SUDC Foundation.

In 2017, with the coordinated efforts of Christina and bereaved parents across the U.S., the campaign continues to grow. To date, thirty-seven (37) U.S. State Legislatures have issued proclamations that March 2017 is SUDC Awareness Month.

"Awareness is a catalyst that can allow the SUDC Foundation to reach more families and help achieve the end goal of a world without sudden unexplained death in childhood. As Drew's Mother, I could not be prouder that his short life and the passion of Christina Grantham, and so many others, have led to success of SUDC awareness month. This initiative is not just for Drew, it is for all SUDC children. Their legacies continue to bring out the best in people each and every day," says Georgia Boswell.

For more information and to view all of the SUDC US State proclamations visit the SUDC Foundation Website at: https://sudc.org/.

About the SUDC Foundation:

The SUDC Foundation is devoted solely to the needs of professionals and families touched by the unexpected death of a child aged 12 months or older. Since its inception, the non-profit Foundation has funded crucial research, helped hundreds of families in over 16 countries, and led many advocacy efforts, including the successful passage of the Sudden Unexpected Death Data Enhancement and Awareness Act, which was signed into law by President Obama in December 2014. For more information, visit https://sudc.org/ and follow us on Twitter @SUDC.

Video (Vimeo), "Explaining the Unexplained":
https://vimeo.com/196286865

The emotional trauma associated with losing a child is overwhelming. But when that loss is combined with a total lack of explanation, grief can become far more complicated, says the SUDC Foundation. Sudden Unexplained Death in Childhood (SUDC) is the sudden unexplained death of a child over the age of one which remains unexplained after a thorough case investigation is conducted.